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My Life As An Ostomate

Life certainly has it's ups and downs.

Over the years I developed a huge hernia completely around my stoma.  It made me look like I was about 9 months pregnant on one side of my stomach.  It caused other problems also including a lot of pain.
 
I had surgery to repair the hernia on December 14, 2004.  This also involved having to move the stoma.  It's been a rough trip this time but things are healing well and my last smoke was on December 13, 2004.
 
Okay it's Feb. 4 and I'm pretty much back to normal, or at least what passes for normal for me.  I even take walks again when the weather cooperates.  Ohio in the winter can be full of surprises to say the least. 

It's now March 7, and except for having Spring Fever, I'm feeling pretty good.  I have to admit though that I am a little tired.  I've spent far too much time over the last few days reading and rereading some of the messages on my favorite ostomy support group message board.
 
One person has been fabricating the lives of two people.  I won't go into details because there are too many and it wouldn't do any good anyway.  Trying to figure out why a person would join a support group for ostomates when neither they nor a family member or friend is or may become an ostomate is mind boggleing.  Then to spend the next year and 3 or 4 months posting nearly 4,000 very long-winded messages, it is useless to try and figure it out.  All we are pretty certain about is that it wasn't for monetary gain.

Well after several months of some pretty bad health issues I'm feeling pretty good.  Of course at the beginning of the year I was feeling pretty good too.  Then things just were pretty awful for a while. 
 
Should I be knocking on wood?on Shaz's site

As near as I can figure the last time I updated this page was Spring 2005, WOW.
 
I made several trips to the hospital in the Spring and Summer of both 2006 and 2007.  It's been a rough couple of years around here.  The older I get the more I feel the need for someone to share my life with but that is evidently NEVER going to happen.  The best I can do is animals.  My sweet little Lady died then a little over a year later Serena's Missy died.  Poor thing about went crazy after Lady died, Serena moved out, and I had to go to the hospital so much.
 
Now I have 3 puppies about 4 months old that are good at driving my BP up.  I forgot what a chore puppies are and when I heard th lady was going to drop them along the road I had to take them.  Now I wondering where my mind was when I made that decision.

Free Calendar from Bravenet.com Free Calendar from Bravenet.com

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I bought a cheap digital camera a few months ago that came with some really great programs for photo editing fun.  This is a photo of me pasted onto a different background.

MY STOMA'S NAME IS GREG (after my surgical oncologist)
 
In early January 1997 I had a bowel blockage and was in severe pain.  I went to the local emergency room and after the problem was diagnosed the ER doctor decided to have me transported to the Arthur G. James Cancer & Research Hospital at OSU.  That is where I was treated for cancer in 1991.
 
The trip from Chillicothe to Columbus is about 60 miles, ambulances aren't known for their smooth ride and a lot of pain meds cause constipation, it was NOT a fun trip.  My journey started in the afternoon and it was the next morning before they had me in a room in a comfy bed.  I think they did finally give me something for the pain along with a stool softener and a gallon of something that I had to drink to clean out my intestines.  To get the full impact of that last little gem, I have to tell you that after my cancer treatments in '91 I had chronic diarrhea for years and sitting had to be done on one of those donut cushions or for very short periods.  I really didn't want to spend the next several hours on the potty chair but everything had to be emptied before I could have the surgery.
 
After spending the night sitting on the potty chair with my head on the bed in an effort to get at least a little sleep, I was finally taken to the OR.  The next thing I knew I was in recovery with my new "friend".
 
I can't really tell you much about the next few days because the pain was bad enough that I was on morphine.  I remember a few visitors and the nurses teaching me how to take care of my stoma and change my appliance.  I spent as much time as possible sleeping.  When my brother came to pick me up and I was walking from the wheelchair to the curb I'd take one step backward for two steps forward and he had to help me step up into his truck. 
 
For the first month there was an ET nurse that visited every day, which was a great help.  On the morphine my kids had a lot of fun with Mom beign high.  Once the pain lessened and I was able to start moving around more I started feeling better pretty quick. 
 
I've felt much better in the years since I had the colostomy than did from '91 to '97.  So even when something seems like it is going to be a bad thing, it can actually be a very good thing.

 

My biggest problem since having my colostomy is not knowing anyone else locally that has had the same experience.  It always helps to have someone to talk to that can give you tips on how to handle the little aggravations.
 
I felt pretty much alone with my concerns until I found some good colostomates support sites.  That is when I found out that there lots of people in the same boat (so to speak). 
 
I had my stoma for about five years before I decided that a connection to the internet might be a good thing.  It is a good thing.  I've been able to research all kinds of things in a lot less time.  Plus I've found some wonderful sites for help with some of my problems AND I was able to set up my own site(s).
 
The biggest boon has been finding connections with other ostomates.  I never use the Yahoo chatrooms but I love the ostomy support chat line.  I also love the message boards because I've been able to add my two cents worth when someone has a question.
This is a link to:
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Shaz's Ostomy Pages

As I mentioned, I was feeling very alone in my situation until I found a couple of very good ostomy support sites.  One is "Shaz's Ostomy Pages" the other is "Living With an Ostomy".  At least those were the first two that I found.  These two sites have helped me feel a lot better about my self-image. 
 
They both have message boards where you can get answers to questions about people with an ostomy whether it is you, a friend, a relative, or spouse.  I have added a message board to this site, the entrance is located on my Home page.

This is a link to:
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Living With an Ostomy

Over the years, life has remained hard.  In October, 1992 Dad died.  He was the only PERSON that I knew beyond a shadow of a doubt, loved me.  With everyone else, I've never been quite sure.

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